 SAKKS - Supporting Aussie Kids with Kabuki Syndrome Inc SAKKS—Supporting Aussie Kids with Kabuki Syndrome was first established in 2004 by parents of a child with Kabuki Syndrome who were faced with the isolation that can be associated with this rare syndrome. Since its inception, SAKKS has grown into a not-for-profit incorporated organisation with representatives in every state of Australia . SAKKS main aim is to help support those affected by KABUKI SYNDROME by offering: information, external links to genetics departments and research as well as links to medical information. The SAKKS website has an online forum, a place for parents to make instant contact with others. A stories page with personal stories written by parents. Photograph pages displaying many of our special members and their journey so far. SAKKS offers support for the siblings, with a forum and stories page that is relevant to them. SAKKS sends out regular newsletters with the current activities of SAKKS. SAKKS offers professional membership; a forum for professionals to aide in information sharing. SAKKS organises annual family days in each state and Nationwide Retreats bi-annually. To contact one of our team members go to our “contact us” page at www.sakks.org—we look forward to hearing from you. 0422 608 858 PO Box 90 - Saint Agnes All Australia 5097 Australia Map Other Categories:  Children Disability General Research Diseases Community Services |
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