SAKKS - Supporting Aussie Kids with Kabuki Syndrome Inc
SAKKS—Supporting Aussie Kids with Kabuki
Syndrome was first established in 2004 by parents of a child with Kabuki Syndrome who were faced with the isolation that can be associated with this rare syndrome. Since its inception, SAKKS has grown into a not-for-profit incorporated organisation with representatives in every state of Australia .
SAKKS main aim is to help support those affected by KABUKI SYNDROME by offering: information, external links to genetics departments and research as well as links to medical information.
The SAKKS website has an online forum, a place for parents to make instant contact with others.
A stories page with personal stories written by parents. Photograph pages displaying many of our special members and their journey so far.
SAKKS offers support for the siblings, with a forum and stories page that is relevant to them.
SAKKS sends out regular newsletters with the current activities of SAKKS.
SAKKS offers professional membership; a forum for professionals to aide in information sharing.
SAKKS organises annual family days in each state and Nationwide Retreats bi-annually.
To contact one of our team members go to our “contact us” page at www.sakks.org—we look forward to hearing from you.
0422 608 858
PO Box 90 - Saint Agnes All Australia 5097 Australia